Patient stories are your stories of being a patient. Hopefully, you’ve had a good experience in your various doctors’ offices, but it’s highly likely not.
Instead, if you’re a woman with a complex or mystery illness, like an autoimmune condition, Lyme disease, a strange gut illness, or confusing allergies and food sensitivities, it’s likely you have a long list of frustrating patient stories.
Being dismissed.
Having your very physical symptoms written off as stress, or related to your menstrual cycle.
Having to fight and advocate to get the care you need and deserve.
I have my own collection of stories, and I’ve heard a lot of others as a practitioner. Some of these patient stories make me want to scream and cry. Like my celiac client, who was extremely clear with hospital staff that she was celiac, only to find that the kitchen was sending food with wheat flour as a thickener.
I recently read a book that helped me see how our experiences are not isolated incidents, but are baked into the very way conventional medicine is designed and operates. It’s called Doing Harm, by Maya Dusenberry.
She sadly exposes the systematic ways in which women are not treated equally in medicine. This truly is a women’s rights issue that needs to be addressed. Women need equal attention in medical research, chronic disease research, medical education, and more. If you’re curious about these issues, I highly recommend the book.
This week, I made a video for you sharing some of my “greatest hits” of patient stories, and sharing my top 5 tips for being an empowered advocate to get the medical care you deserve. You can check it out here.
